123 – Quote hub

Time (24h)	Presentation	Speaker
8:30 - 8:45	Opening Remarks	Dr. Najat Rouh Aldeen
8:45 – 9:00	Current understanding of epidemiology, successes, and challenges of prevention programs for hemoglobinopathies	Mrs. Michelle Abi Saad
SESSION 1	Conventional management of thalassemia and SCD in Arab countries Chairperson: Prof. Ali Taher – Dr Amal Khamis
09:00 – 9:20	Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation	Prof. Amal El-Beshlawy
9:20 – 9:40	Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload	Prof. Khaled Musallam
9:40 – 10:00	Current management and unmet needs in SCD: the journey from childhood to adulthood	Prof. Miguel Abboud
10:00–10:15	Panel discussion and Q/A
10:15-10:30	COFFEE BREAK
SESSION 2	How I treat thalasemia? Chairperson: Prof. Mona Hamdy - Dr. Mohammad Al-Bader
10:30-10:50	Multidisciplinary care in transfusion-dependent thalassemia: case illustration	Dr. Ahmad Alsaffar
10:50-11:10	Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration	Dr. Taghreed Al-Eissa
11:10-11:30	Transition from pediatric to adult care	Dr. Maha Bourusly
11:30-11:45	Panel discussion and Q/A
11:45-13:00	Friday Prayer and Lunch break
13:00–14:30	Opening ceremony
SESSION 3	Novel disease-modifying therapies in thalassemia and SCD Chairperson: D. Ali Almuhaini - Dr. Huda Alsahaf
14:30-14:50	Novel therapies in thalassemia	Prof. Ali Taher
14:50-15:10	Novel therapies in SCD	Prof. Miguel Abboud
15:10-15:25	Panel discussion and Q/A
SESSION 4	Curative therapies in thalassemia and SCD Prof. Khaled Musallm - Dr. Samar Ousia
15:40-16:05	Debate: BMT as the curative therapy of choice in thalassemia and SCD	Prof. Miguel Abboud
16:05-16:30	Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD	Dr. Sundus Alsharidah
16:30-16:45	Panel discussion and Q/A
16:45-17:00	Coffee Break
17:00-18:30	TATAF / Thalassemia Associations
17:00-17:05	Welcome Note	Dr. Bashar El Karmi
Session 1	Dr Shahraad Algburi & Mrs Manal Zaatar
17:05-17:20	Umet Patients Needs to be identified by each association Challenges in adopting International Clinical Guidelines	Dr . Al Falalh , Dr Tarawa & Dr Khattab
17:20-17:30	Challenges in Adherence to treatment	Dr Tarawa, Dr Jawad
17:30-17:40	Challenges in Prevention and National Registries	M. Abi Saad, Dr Al Falah, Dr Djeunouni
17:40-17:50	Challenges in Integration ( marriage, jobs etc..)- Social Laws	Mrs. Zaatar, Mrs Aboulghosh & Mr Merdas
Session 2	Moderators for Session Mrs . Michele Abi Saad, Mrs. Jihad Aboul ghosh
17:50-18:00	Challenges in motivating volunteers and Empowering Patients	Dr El Karmi
18:00-18:15	SWOT analysis exercise for NGOS ( identifying strength, weaknesses, opportunities and threats)	Mrs Abi Saad
18:15-18:25	Collaboration between associations , TATAF and TIF TATAF newsletter/ social media	Mrs Aboulghoush, Mr. Merhi
18:25-18:30	TATAF / Thalassemia Association - Closing Remarks

Opening Ceremony

Time (24h)	Presentation	Speaker
8:30 - 8:45	Opening Remarks	Dr. Najat Rouh Aldeen
8:45 – 9:00	Current understanding of epidemiology, successes, and challenges of prevention programs for hemoglobinopathies	Mrs. Michelle Abi Saad
SESSION 1	Conventional management of thalassemia and SCD in Arab countries Chairperson: Prof. Ali Taher – Dr Amal Khamis
09:00 – 9:20	Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation	Prof. Amal El-Beshlawy
9:20 – 9:40	Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload	Prof. Khaled Musallam
9:40 – 10:00	Current management and unmet needs in SCD: the journey from childhood to adulthood	Prof. Miguel Abboud
10:00–10:15	Panel discussion and Q/A
10:15-10:30	COFFEE BREAK
SESSION 2	How I treat thalasemia? Chairperson: Prof. Mona Hamdy - Dr. Mohammad Al-Bader
10:30-10:50	Multidisciplinary care in transfusion-dependent thalassemia: case illustration	Dr. Ahmad Alsaffar
10:50-11:10	Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration	Dr. Taghreed Al-Eissa
11:10-11:30	Transition from pediatric to adult care	Dr. Maha Bourusly
11:30-11:45	Panel discussion and Q/A
11:45-13:00	Friday Prayer and Lunch break
13:00–14:30	Opening ceremony
SESSION 3	Novel disease-modifying therapies in thalassemia and SCD Chairperson: D. Ali Almuhaini - Dr. Huda Alsahaf
14:30-14:50	Novel therapies in thalassemia	Prof. Ali Taher
14:50-15:10	Novel therapies in SCD	Prof. Miguel Abboud
15:10-15:25	Panel discussion and Q/A
SESSION 4	Curative therapies in thalassemia and SCD Prof. Khaled Musallm - Dr. Samar Ousia
15:40-16:05	Debate: BMT as the curative therapy of choice in thalassemia and SCD	Prof. Miguel Abboud
16:05-16:30	Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD	Dr. Sundus Alsharidah
16:30-16:45	Panel discussion and Q/A
16:45-17:00	Coffee Break
17:00-18:30	TATAF / Thalassemia Associations
17:00-17:05	Welcome Note	Dr. Bashar El Karmi
Session 1	Dr Shahraad Algburi & Mrs Manal Zaatar
17:05-17:20	Umet Patients Needs to be identified by each association Challenges in adopting International Clinical Guidelines	Dr . Al Falalh , Dr Tarawa & Dr Khattab
17:20-17:30	Challenges in Adherence to treatment	Dr Tarawa, Dr Jawad
17:30-17:40	Challenges in Prevention and National Registries	M. Abi Saad, Dr Al Falah, Dr Djeunouni
17:40-17:50	Challenges in Integration ( marriage, jobs etc..)- Social Laws	Mrs. Zaatar, Mrs Aboulghosh & Mr Merdas
Session 2	Moderators for Session Mrs . Michele Abi Saad, Mrs. Jihad Aboul ghosh
17:50-18:00	Challenges in motivating volunteers and Empowering Patients	Dr El Karmi
18:00-18:15	SWOT analysis exercise for NGOS ( identifying strength, weaknesses, opportunities and threats)	Mrs Abi Saad
18:15-18:25	Collaboration between associations , TATAF and TIF TATAF newsletter/ social media	Mrs Aboulghoush, Mr. Merhi
18:25-18:30	TATAF / Thalassemia Association - Closing Remarks

Time (24h)	Presentation	Speaker
SESSION 1	Psychosocial management work shops
09:00 - 09:15	قصة نجاح مريض ثلاسيميا Success story of Role model Living with Thalassemia	Ms. Lamiaa Alqabandi الأستاذة لمياء القبندي 🇰🇼
09:15 - 10:15	ورشة عمل الاولي :لاستدامة الشفائية النفسية والسلوكية لمرضى الثلاسيميا وأسرهم WORKSHOP 1: Psychological Care and Support for Thalassemia Patients Read More الاستدامة الشفائية النفسية والسلوكية لمرضى الثلاسيميا وأسرهم تتطلب نهجًا شاملًا، يركز على دعم المرضى من جميع الجوانب النفسية والسلوكية، مع ضرورة تكامل العلاج الطبي مع العناية النفسية والتوجيه السلوكي. من خلال هذا التعاون المتكامل، يمكن تحسين جودة حياة المرضى، وتمكينهم من التكيف مع المرض بشكل أفضل، مع ضمان تقديم الدعم الكافي لأسرهم أيضًا. Title: Psychological Care and Support for Thalassemia Patients: A One-Day Training for Healthcare Providers Description: This course can help healthcare providers develop the emotional and psychological skills needed to better support thalassemia patients, their families, and caregivers, ensuring that their care goes beyond medical treatment and addresses their mental and emotional needs. Key Topics: CBT Introduction to cognitive-behavioral therapy (CBT) techniques for anxiety and depression. This method is used to help patients challenge negative thoughts and promote healthier thinking patterns Goal Setting & Positive Psychology Approach: Helping patients set achievable, positive goals despite their condition to develop a sense of purpose and autonomy in the patient’s life Learning Through Example: Real-life examples of thalassemia patients and the psychological challenges they face through Interactive role-playing to practice psychological support techniques Q& A	Dr. Amar Bahabhani د. آمار بهبهاني 🇰🇼
10:15 – 10:30	Coffee Break استراحة قصيرة
10:30- 11:30	ورشة العمل الثانية : قدرية الألم وفرص الحياة Workshop 2: “ّInevitability of Pain and Life’s Chances” Read More How to self compassion Dealing with challenges Building a life worth living كيفية التراحم مع الذات التعامل مع التحديات بناء حياة تستحق أن تعاش	Dr. Ashraf Omar د. أشرف عمر 🇰🇼
11:30 - 13:00	صلاة الجمعة واستراحة الغداء Friday Prayer and Lunch Break
13:00 - 15:00	ورشة عمل الثالثة : لاطفال الثلاسيميا وفقر الدم المنجلي WORKSHOP 3: Pediatric Psychological Care and Support for Thalassemia and SCA Read More بناء الثقة والتغلب على تحديات الحياة اليومية الصحة النفسية: صورة الجسم، والتنمر، والعلاقات كيف تُخبر طفلك عن الثلاسيميا وكيف تتعامل معه تحديات الزواج: كيف تُخبر شريكك عن الثلاسيميا الحفاظ على علاقات أسرية صحية التكيف مع نمط الحياة: ممارسة الرياضة، الدراسة، العمل. كيفية موازنة العلاج مع الحياة اليومية. تشجيع الحياة الطبيعية مع إدارة الصحة Building Confidence and Overcoming Challenges in Daily Life Mental Health: Body Image, Bullying, and Relationships How to Tell Your Child About Thalassemia and How to Deal with It Marriage Challenges: How to Tell Your Partner About Thalassemia Maintaining Healthy Family Dynamics Lifestyle Adaptation: Exercise, school, work. How to balance treatment with daily life. Encourage normalcy while managing health	Dr. Amthal Almutairi د. أمثال المطيري 🇰🇼
15:00 – 16:00	ساعة مرح مع أبطال الدم Blood Heros workshop

Nurse Workshop – Room#4

Time (24h)	Presentation	Speaker
SESSION 1	Foundations of Thalassemia Care
09:00-09:20	Disease Overview Read More Types of thalassemia (α, β, transfusion-dependent vs. non-transfusion-dependent). Genetic inheritance and family counseling basics. Pathophysiology: Hemoglobin synthesis defects, anemia mechanisms, and iron overload.	Dr. Noura Aljwaisri 🇰🇼
09:20-10:20	Treatment Protocols Read More Blood Transfusions: Indications Pre-transfusion testing Managing transfusion reactions Iron Chelation Therapy Emerging Therapies- Nursing roles in post-treatment monitoring. Complications Management Iron overload Infections Osteoporosis and bone health strategies	Dr. Abdullah Alotaibi Dr. Ahmad Alsaffar 🇰🇼
10:20-10:40	Acute iron toxicity	Dr. Noha Halloull
10:40-10:50	Q&A
10:50-11:00	Coffee Break
Session 2	Blood Transfusion and Blood Bank
11:00-11:20	Emergency Management : Transfusion reactions	Dr. Nouf Alkandari 🇰🇼
11:20-11:40	Central Blood Bank most common problems	Dr Hala Samuell 🇰🇼
11:40-11:50	Q&A
11:50 – 13:00	Friday Prayer and Lunch Break
Session 3	Advanced Nursing Practices & Psychosocial Care
13:00 – 14:00	Psychological Care and Support for Thalassemia and sickle cell Patients Read More Introduction to cognitive-behavioral therapy (CBT) techniques for anxiety and depression. Goal Setting & Positive Psychology Approach: Helping patients set achievable, positive goals despite their condition to develop a sense of purpose and autonomy in the patient’s life Learning Through Example: Real-life examples of thalassemia and sickle cell patients and the psychological challenges they face through Interactive role-playing to practice psychological support techniques	Dr Amar Bahbahani 🇰🇼
14:00-15:00	Psychosocial Support Read More Psychosocial Support Recognizing anxiety/depression (PHQ-9/GAD-7 screening). Communication techniques for stigma reduction (e.g., workplace/school advocacy). Family education: Balancing support without Addressing myths (e.g., " Case Studies & Role-Playing Scenario 1: Managing a teenager refusing chelation due to body image concerns. Scenario 2: Educating parents about genetic risks for future pregnancies.Transfusions are addictive".	TBA
	End of Day

Time (24h)	Presentation	Speaker
SESSION 5	Meet the expert
09:00 - 9:45	Four parallel sessions (breakout) to discuss challenging local cases	Prof. Ali Taher Prof. Miguel Abboud Prof. Amal El-Beshlawy Prof. Mona Hamdy
SESSION 6	Thalassemia as a multiorgan disease Chairperson: Prof. Amal El-Beshlawy - Dr Abdullaah Alotaibi
9:45 - 10:05	Dental care management for thalassemia and sickle cell disease patients	Dr Hani Fadel
10:05 - 10:25	Liver disease	Dr. Abdullah Althaher
10:25 - 10:45	Endocrine and bone disease	Prof. Mona Hamdy
10:45 –11:05	Fertility and pregnancy	Dr. Eman Al-Saygh
11:05 –11:15	Coffee break
11:15 - 11:35	Closer look at thrombosis, renal disease, and malignancy	Prof. Ali Taher
11:35- 11:55	Psychological burden	Dr. Hussain AlShatti
11:55 –12:05	Panel discussion and Q/A
12:05-12:20	Prayer & Coffee break
SESSION 7	Silent Genes, Loud Symptoms: Diagnosing Hemoglobinopathies Chairperson: Dr. Nouf Alkandari - Dr. Eman Matar
12:20 - 12:40	Thalasemia Diagnosis: Challenges and Limitations	Dr. Azza Mustafa
12:40 –13:00	From Traditional Methods to NGS: A Game-Changer in the Diagnosis and Management of Hemoglobinopathies	Dr. Himanshu Chauhan
13:00 - 13:10	Panel discussion and Q/A
SESSION 8	Management of hemoglobin disorders in the digital era Chairperson: Dr. Hanan Alwazzan – Engineer Sulaiman Al-Arouj
13:10-13:30	Blood, Bytes and Boundaries: Ethical AI in Hematology	Dr. Ali Alfaili
13:30-13:50	The role of AI in Thalasemia	Prof. Nadia Badrawi
13:50 - 14:00	Panel discussion and Q/A
14:00 - 15:00	Lunch Break
SESSION 9	Management of hemoglobin disorders in the time of crisis Chairperson: Dr Mariam Alfaili - Dr. Maha Burisli
15:00 - 15:20	The case of Gaza	Dr. Bashar Karmi
15:20 - 15:40	The case of Lebanon	Ms. Michelle Abi Saad Prof. Ali Taher
15:40- 16:00	Learnings from Covid-19 Crisis	Dr. Najat Rouh Aldeen
16:00 - 16:10	Panel discussion and Q/A
SESSION 10	Research on hemoglobin disorders in Arab countries Chairperson: Prof. Khaled Musallam – Dr Najat Rouh aldeen
16:10 - 16:30	Success story	Dr Ahmad Tarawa
16:30-16:50	Success stories: the Middle East Thought Leaders Group	Prof. Ali Taher
16:50-17:00	Coffee Break
Session 11	Recommendation and Closing Remarks
17:00 - 18:00	Round table discussion	Prof. Ali Taher Prof. Miguel Abboud Prof. Amal El-Beshlawy Prof. Mona Hamdy Dr. Najat Rouh Aldeen

Time (24h)	Presentation	Speaker
SESSION 1	Psychosocial sessions workshop
09:30 - 10:30	ورشة العمل الرابعة: تقنية التحرر من قيود الألم WORKSHOP 4: Freeing Yourself from the Bonds of Pain – A Healing Technique Workshop Read More تقنيات لإزالة المشاعر السلبية والألم يتضمنها استرخاء وتنفس يساعد في التخلص من الألم والتعايش مع المرض EFT technique Spotlight exercise Container exercise Butterfly hug technique	Mrs. Haiat Ashkanani أستاذة حياة اشكناني Mrs. Mona Alkanderi أستاذة منى الكندري 🇰🇼
10:30 - 10:45	COFFEE BREAK استراحة قصيرة
SESSION 2	Thalassemia and Sickle cell Overview and Treatment تعرف على الثلاسيميا والانيميا المنجلي
11:05 - 11:25	نقل الدم: ما ينبغي للمرضى معرفته Blood Transfusions: What Patients Should Know	Dr. Jawad Aboud د. جواد عبود 🇮🇶
SESSION 3	علاج زيادة الحديد ومضاعفاتها Managing Iron Overload and Complications
11:25 – 11:45	الوقاية وعلاج زيادة الحديد Iron Overload and Chelation Therapy Read More الوقاية وعلاج زيادة الحديد: نصائح حول علاج الآثار الجانبية والالتزام بالعلاج والإرشادات الغذائية ونصائح الوقاية وعلاج المضاعفات: أمراض القلب والكبد Iron Overload and Chelation Therapy: Tips on Managing Side Effects and Treatment Adherence and Nutritional Guidance Prevention tips and Management of Complications: Heart and Liver Disease	Dr. Mustafa Alfalah د. مصطفى الفلاح 🇯🇴
11:45 – 12:15	Prayer and coffee Break استراحة الصلاة
SESSION 4	الخصوبة والحمل والعلاجات الجديدة Fertility, Pregnancy, and New Treatments
12:35 – 12:55	Fertility and Pregnancy in Thalassemia الخصوبة والحمل والعلاجات الجديدة	Dr Hanoof Alsmait د. هنوف السميط 🇰🇼
13:00 - 13:30	كلمة افتتاحية ونظرة عامة على مرض الثلاسيميا Opening Remarks and Overview on Thalassemia	Prof. Ali Taher بروفسور علي طاهر
13:30 – 14:00	Updates On New Noval Therapy التطورات الحديثة حول العلاج الجديد	Prof. Khaled Musallam بروفسور خالد المسلم
14:00 – 15:00	Lunch break استراحة الغداء
15:00 – 15:20	تجربة المريض في التعايش مع مرض فقر الدم المنجلي إدارة مرض فقر الدم المنجلي The Patient Experience Living with Sickle Cell Disease Management of Sickle Cell Disease	Prof. Megiel Aboud بروفسور ميغيل عبود
15:20-15:40	Bone Marrow Transplant Update: Who Qualifies ما استحدث حول زراعة نخاع العظم: من المؤهل؟	Dr. Samar Ouisa د. سمر أوسية
15:40-15:50	إستراحة
15:50 – 16:10	Endocrinology in Thalassemia الغدد الصماء في الثلاسيميا مرض فقر الدم المنجلي -الوقاية والعلاج	Dr Mona Hamdy د. منى حمدي
16:10-16:30	التغذية والاستشفاء Nutrition and Recovery in Sickle Cell Disease	Dietician. Ghadeer Alazmi الأستاذة غدير العازمي 🇰🇼
	Closing remarks – الختام

We are thrilled to invite you to an Advanced Access Devices Masterclass!
Location: New Maternity Hospital, 1st Floor
Date: Thursday 29th of May

Time	Topic
8:30 AM- 9:00 AM	Registration
9:00 AM – 9:30 AM	Introduction: Vascular Access Management
9:30 AM- 10:30 AM	Care and Maintenance for PIVCs
10:30 AM- 10:45 AM	Break
10:45 AM- 11:45 AM	Care and Maintenance for PICCs
11:45 AM- 12:00 PM	Break
12:00 PM- 1:00 PM	Port Access Needles: Access and DeAccess

We are thrilled to invite you to an Advanced Access Devices Masterclass!
Location: New Maternity Hospital, 1st Floor
Date: Friday 30th of May

Time	Topic
1:30 PM- 2:00 PM	Registration
2:00 PM- 2:30 PM	Introduction: Importance of Establishing a VAD Algorithm
2:30 PM- 3:30 PM	Introduction to PICCs and Benefits of Bedside Placement
3:30 PM- 4:00 PM	Break
4:00 PM- 5:00 PM	Novel Approach to Midline Insertion

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