1st Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF

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1st Pan Arab

Thalasemia & Sickle Cell Disease Awareness Conference – TATAF

Al Messilah 2, Jumeriah Hotel, Kuwait

30 to 31 May 2025

– CME Accredited –

WELCOME MESSAGE

1st Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF

Dear Colleagues,

We are delighted to welcome you to the Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF, taking place from May 30–31, 2025, at the Jumeirah Hotel Kuwait.

This important event unites healthcare professionals, patients, and stakeholders to raise awareness, promote early diagnosis, and advance care for thalassemia across the Arab region. Together, we aim to spotlight cutting-edge treatments, the role of genetic counseling, and the power of multidisciplinary collaboration.

Join us as we work collectively to improve outcomes, support patients and families, and shape a healthier future for all.

Dr. Najat Rouhaldeen
Conference Chairperson - Hematology Consultant

DR. NAJAT ROUH-EL DIN
CONFERENCE CHAIRPERSON - HEMATOLOGY CONSULTANT

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Target Audience

For all healthcare professionals interested in the prevention, diagnosis, and management of thalassemia and related blood disorders, including, but not limited to:

Hematologists and Pediatricians
Geneticists and Genetic Counselors
Primary Care Physicians and Specialists involved in managing chronic blood disorders
Nurses and Allied Health Professionals working in thalassemia care
Healthcare Administrators and Policymakers
Researchers and Academics in hematology and genetic medicine
Patients with Thalassemia and Their Families

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Agenda

Shared Session
Duration	Topic	Speaker
Opening Session Burden of thalassemia in Arab countries
Chairperson: Dr. Najat Rouh-Al Deen
09:00 - 09:20	Welcome and opening remarks	Dr. Ahmad Alawadhi - Minister of Health
		Dr. Ahmad Alhuriji (KHA)
		TATAF - TBC
09:20 - 09:40	TIF Arab Thalassemia Associations Forum (TATAF): vision and mission	TBC
09:40 - 10:00	Current understanding of epidemiology ،successes and challenges of prevention programs for hemoglobinopathies	Mrs. Michelle Abi Saad
10:00-10:20	successes/challenges of prevention PMC programs for hemoglobinopathies in Kuwait 16 years’ experience	Dr. Najat Rouh-Al Deen
10:20 - 10:30	Q&A
10:30 - 10:45	Coffee break

SCIENTIFIC
Duration	Topic	Speaker
SESSION 1	Conventional management of thalassemia and SCD in Arab countries
SESSION 1	Chairperson: Prof. Ali Taher – Dr Amal Khamis
10:45 - 11:05	Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation	Prof. Amal El-Beshlawy
11:05 - 11:25	Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload	Prof. Khaled Musallam
11:25 - 11:45	Current management and unmet needs in SCD: the journey from childhood to adulthood	Prof. Miguel Abboud
11:45 - 12:00	Panel discussion and Q/A	All faculty
12:00-13:15	Praying and Lunch Break
SESSION 2	Other practical considerations in care
SESSION 2	Chairperson: Prof. Mona Hamdy - Dr. Mohammad Al-Bader
13:15- 13:35	Multidisciplinary care in transfusion-dependent thalassemia: case illustration	Dr. Ahmad Alsaffar
13:35- 13:55	Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration	Dr. Taghreed Al-Eissa
13:55-14:15	Transition from pediatric to adult care	Dr. Maha Bourusly
14:15 –14:25	Panel discussion and Q/A	All faculty
SESSION 3	Novel disease-modifying therapies in thalassemia and SCD
SESSION 3	Chairperson: Prof. Khaled Musallam - Dr. Huda Alsahaf
14:25- 14:45	Novel therapies in thalassemia	Prof. Ali Taher
14:45 - 15:05	Novel therapies in SCD	Prof. Miguel Abboud
15:05 - 15:20	Panel discussion and Q/A	All faculty
	Coffee break
SESSION 4	Curative therapies in thalassemia and SCD
SESSION 4	Chairperson: Prof. Miguel Abboud – Dr. Maha Burisli
15:20 –15:40	Debate: BMT as the curative therapy of choice in thalassemia and SCD	Prof. Miguel Abboud
15:40-16:00	Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD	Dr. Sundus Alsharidah
16:00-16:05	Panel discussion and Q/A	All faculty
16:15-17:00	Industry symposia	TBA
End of Day One

Time	Presentation	Speaker/Facilitator
SESSION 1	Psychosocial management work shops		#colspan#
10:45 - 11:00	قصة نجاح مريض ثلاسيميا Success story of Role model Living with Thalassemia	Ms. Lamiaa Alqabandi الأستاذة لمياء القبندي 🇰🇼
11:00 - 12:00	ورشة عمل الاولي :الصحة النفسية وجودة الحياة: علاقتك مع جسدك وروحك وعقلك WORKSHOP 1: Psychological Care and Support for Thalassemia Patients Read More ١. فهم التحديات النفسية التي يواجهها مرضى الثلاسيميا والمتعلقة بصورة الجسد، التنمر، والعلاقات. ٢. ⁠تقديم الدعم النفسي والعاطفي لمرضى الثلاسيميا لتحسين صورة الجسد والتعامل مع التنمر. ⁠٣. اكتساب مهارات لتحسين احترام الذات والتعامل مع الضغوط الاجتماعية. ٤. ⁠تعزيز بيئة داعمة لفتح المناقشات حول المواضيع الحساسة التي يتعرض لها المرضى. . Body Image Struggles: How do thalassemia and its treatments (e.g., blood transfusions, iron chelation) can affect physical appearance and self-esteem. The emotional impact of body changes: hair loss, skin tone changes, scars, and the feeling of being different Dealing with Bullying: Discuss how children and adults with chronic conditions like thalassemia may experience bullying due to their appearance, behavior, or medical needs Relationships and Communication: How do thalassemia patients may feel misunderstood by friends, family, or spouse due to their condition	Dr. Amar Bahabhani د. آمار بهبهاني 🇰🇼
12:00 – 13:30	Prayer and Lunch Break وقت الصلاة واستراحة الغداء		#colspan#
13:30- 14:20	ورشة العمل الثانية : تقديم الدعم النفسي والاجتماعي لمرضى الثلاسيميا والانيميا المنجلي Workshop 2: “Living Fully with Thalassemia and Sickle cell anemia: Empowerment, Relationships, and Resilience” Read More هدف الورشة: تقديم الدعم النفسي والاجتماعي لمرضى الثلاسيميا والانيميا المنجلية من خلال تعزيز الثقة بالنفس، ومواجهة التحديات اليومية، وتحسين الصحة النفسية والعلاقات الاجتماعية والعائلية. كما تهدف الورشة إلى مساعدة المرضى وعائلاتهم على التكيف مع نمط الحياة والعلاج بشكل متوازن، مع التركيز على الزواج، الدراسة، والعمل، وتشجيعهم على عيش حياة طبيعية قدر الإمكان Building Confidence and Overcoming Challenges in Daily Life Mental Health: Body Image, Bullying, and Relationships How to Tell Your Child About Thalassemia/ SCA and How to Deal with It Marriage Challenges: How to Tell Your Partner About Thalassemia/ SCA Maintaining Healthy Family Dynamics Lifestyle Adaptation: Exercise, school, work. How to balance treatment with daily life. Encourage normalcy while managing health.	Dr Hassan Alshatti د. حسن الشطي 🇰🇼
14:20 - 14:30	Coffee Break استراحة قصيرة		#colspan#
14:30 – 15:30	ورشة عمل الثالثة : تقنية التحرر من قيود الألم تقنيات لإزالة المشاعر السلبية والألم WORKSHOP 3: Freeing Yourself from the Bonds of Pain – A Healing Technique Workshop Read More تقنيات لإزالة المشاعر السلبية والألم يتضمنها استرخاء وتنفس يساعد في التخلص من الألم والتعايش مع المرض EFT technique Spotlight exercise Container exercise Butterfly hug technique	Mrs. Haiat Ashkanani أستاذة حياة اشكناني 🇰🇼

Time	Presentation	Speaker/Facilitator
SESSION 1	Foundations of Thalassemia Care		#colspan#
10:45-11:00	Disease Overview Read More Types of thalassemia (α, β, transfusion-dependent vs. non-transfusion-dependent). Genetic inheritance and family counseling basics. Pathophysiology: Hemoglobin synthesis defects, anemia mechanisms, and iron overload.	Dr. Noura Aljwaisri 🇰🇼
11:00 -11:15	Treatment Protocols Read More Blood Transfusions: Indications Pre-transfusion testing Managing transfusion reactions Iron Chelation Therapy Emerging Therapies- Nursing roles in post-treatment monitoring.	Dr. Abdullah Alotaibi & day care group 🇰🇼
11:15 – 11:30	Complications Management Read More Iron overload Infections Osteoporosis and bone health strategies	Dr Ahmad Asafar & day care group 🇰🇼
11:30 – 11:45	Acute iron toxicity	Amiri intoxication team
11:50 – 12:00	Q&A		#colspan#
12:00 -13:00	Prayer and Lunch break		#colspan#
13:00– 13:20	Emergency Management : Transfusion reactions	Dr. Nouf Alkandari 🇰🇼
13:20 – 13:40	Central Blood Bank most common problems	Dr Hala Samuell 🇰🇼
13:40-14:00	Panel Discussion		#colspan#
14:00 – 17:00	Hands-On Skills Lab Practical Read More Venipuncture/IV access techniques for patients with fragile veins. Subcutaneous deferoxamine pump setup and troubleshooting. Port-a-cath care and infection prevention.	NBK Senior Nurse Sabah Hospital -Day Care Senior Nurse

SCIENTIFIC
Duration	Topic	Speaker
SESSION 5	Meet the expert
09:00 - 9:45	Four parallel sessions (breakout) to discuss challenging local cases	Prof. Ali Taher
		Prof. Miguel Abboud
		Prof. Amal El-Beshlawy
		Prof. Mona Hamdy
SESSION 5	Thalassemia as a multiorgan disease
SESSION 5	Chairperson: Prof. Amal El-Beshlawy - Dr Abdullaah Alotaibi
9:45 - 10:00	Dental care management for thalassemia and sickle cell disease patients	Dr Hani Fadel
10:00 - 10:15	Liver disease	Dr. Abdullah Althaher
10:15 - 10:30	Endocrine and bone disease	Prof. Mona Hamdy
10:30 - 10:45	Fertility and pregnancy	Dr. Eman Al-Saygh
10:45 - 11:00	Closer look at thrombosis, renal disease, and malignancy	Prof. Ali Taher
11:00 - 11.15	Psychological burden	TBA
11:15 - 11:30	Panel discussion and Q/A	All faculty
11:30 - 11:50	Coffee break
SESSION 7	Other practical considerations in hemoglobinopathies care
SESSION 7	Chairperson: Dr Sundus Alsherida - Dr. Najat Rouh Aldeen
11:50 - 12:10	Patient blood management	Dr Mariam Alfaili
12:10 - 12:20	Novel approaches in diagnostics	TBA
12:20 - 12:30	Panel discussion and Q/A	All faculty
SESSION 8	Management of hemoglobin disorders in the digital era
SESSION 8	Chairperson: Dr. Hanan Alwazzan – Engineer Sadeq Lari
12:30 - 12:45	Blood, Bytes and Boundaries: Ethical AI in Hematology	Dr. Ali Alfaili
12:45-13:05	The role of AI	Prof. Nadia Badrawi
13:05 - 13:25	The role of telemedicine	Prof. Hatoon Ezzat
13:25 - 13:35	Panel discussion and Q/A	All faculty
13:35 - 14:30	Lunch Break
SESSION 9	Management of hemoglobin disorders in the time of crisis
SESSION 9	Chairperson: Dr. Ali Al-Muhaini – Dr Mariam Alfaili
14:30 - 14:50	The case of Gaza	Dr. Bashar Karmi
14:50 - 15:10	The case of Lebanon and Syria	Ms. Michelle Abi Saad/Prof. Ali Taher
15:10 - 15:30	Learnings from Covid-19 Crisis	Dr. Najat Rouh Aldeen
15:30 - 15:50	Panel discussion and Q/A	All faculty
SESSION 10	Research on hemoglobin disorders in Arab countries
SESSION 10	Chairperson: Prof. Khaled Musallam – Dr Najat Rouh aldeen
15:50 - 16:10	Success stories: SCD STUDY	Dr Ahmad Tarawa
16:10-16:30	Success stories: the Middle East Thought Leaders Group	Prof. Ali Taher
16:30 - 17:25	Round table discussion	Prof. Ali Taher
		Prof. Miguel Abboud
		Prof. Amal El-Beshlawy
		Prof. Mona Hamdy
		Dr. Najat Rouh Aldeen
Duration

Time	Presentation	Speaker/Facilitator
SESSION 1	Psychosocial sessions workshop		#colspan#
08:30 – 10:30	ورشة العمل الرابعة: لأطفال الثلاسيميا وفقر الدم المنجلي بناء الثقة والتغلب على تحديات الحياة اليومية WORKSHOP 4 Podiatric Psychological Care and Support for Thalassemia and SCA Read More بناء الثقة والتغلب على تحديات الحياة اليومية الصحة النفسية: صورة الجسم، والتنمر، والعلاقات كيف تُخبر طفلك عن الثلاسيميا وكيف تتعامل معه تحديات الزواج: كيف تُخبر شريكك عن الثلاسيميا الحفاظ على علاقات أسرية صحية التكيف مع نمط الحياة: ممارسة الرياضة، الدراسة، العمل. كيفية موازنة العلاج مع الحياة اليومية. تشجيع الحياة الطبيعية مع إدارة الصحة Building Confidence and Overcoming Challenges in Daily Life Mental Health: Body Image, Bullying, and Relationships How to Tell Your Child About Thalassemia and How to Deal with It Marriage Challenges: How to Tell Your Partner About Thalassemia Maintaining Healthy Family Dynamics Lifestyle Adaptation: Exercise, school, work. How to balance treatment with daily life. Encourage normalcy while managing health	Dr. Amthal Almutairi د. أمثال المطيري 🇰🇼
10:30 - 10:45	COFFEE BREAK استراحة قصيرة		#colspan#
SESSION 2	Thalassemia and Sickle cell Overview and Treatment تعرف على الثلاسيميا والانيميا المنجلي		#colspan#
10:45 - 11:05	كلمة افتتاحية ونظرة عامة على مرض الثلاسيميا Opening Remarks and Overview on Thalassemia	Prof. Ali Taher 🇱🇧
11:05 - 11:25	نقل الدم: ما ينبغي للمرضى معرفته Blood Transfusions: What Patients Should Know	Dr. Jawad Aboud 🇮🇶
SESSION 3	علاج زيادة الحديد ومضاعفاتها Managing Iron Overload and Complications		#colspan#
11:25 – 11:45	الوقاية وعلاج زيادة الحديد Iron Overload and Chelation Therapy Read More الوقاية وعلاج زيادة الحديد: نصائح حول علاج الآثار الجانبية والالتزام بالعلاج والإرشادات الغذائية ونصائح الوقاية وعلاج المضاعفات: أمراض القلب والكبد Iron Overload and Chelation Therapy: Tips on Managing Side Effects and Treatment Adherence and Nutritional Guidance Prevention tips and Management of Complications: Heart and Liver Disease	Dr. Mustafa Alfalah 🇯🇴
11:45 – 12:10	Prayer and coffee Break استراحة الصلاة		#colspan#
SESSION 4	الخصوبة والحمل والعلاجات الجديدة Fertility, Pregnancy, and New Treatments		#colspan#
12:10 - 12:30	Endocrinology in Thalassemia الغدد الصماء في الثلاسيميا مرض فقر الدم المنجلي -الوقاية والعلاج	Dr Mona Hamdy
12:30 – 12:40	Updates On New Novel Therapy التطورات الحديثة حول العلاج الجديد	Prof. Khaled Musallam
SESSION 5	العلاجات الجديدة والعلاجات المبتكرة New Treatments and Innovative Therapies		#colspan#
12:40 – 13:00	Fertility and Pregnancy in Thalassemia الخصوبة والحمل والعلاجات الجديدة	Dr Hanoof Alsmait 🇰🇼
13:00 – 13:20	Bone Marrow Transplant Update: Who Qualifies ما استحدث حول زراعة نخاع العظم: من المؤهل؟	Dr Ali Taher
13:20-13:40	Gene Therapy: Where Are We? العلاج الجيني: أين نحن؟	Dr Sundus Alsherida Dr Ahmad Aqeel 🇰🇼
13:40 – 14:30	Lunch break استراحة الغداء		#colspan#
SESSION 6	مرض فقر الدم المنجلي - تجربة المريض والعلاج SCD - The Patient Experience and management		#colspan#
14:30 – 15:00	تجربة المريض في التعايش مع مرض فقر الدم المنجلي إدارة مرض فقر الدم المنجلي The Patient Experience Living with Sickle Cell Disease Management of Sickle Cell Disease	Prof. Megiel Aboud
15:00 – 15:30	Closing remarks – الختام	TBA

Time	Presentation	Speaker/Facilitator
SESSION 1	Advanced Nursing Practices & Psychosocial Care		#colspan#
9:00-10:30	Psychological Care and Support for Thalassemia and sickle cell Patients Read More Introduction to cognitive-behavioral therapy (CBT) techniques for anxiety and depression. Goal Setting & Positive Psychology Approach: Helping patients set achievable, positive goals despite their condition to develop a sense of purpose and autonomy in the patient’s life Learning Through Example: Real-life examples of thalassemia and sickle cell patients and the psychological challenges they face through Interactive role-playing to practice psychological support techniques	Dr Amar Bahbahani 🇰🇼
10:30-10:40	Q&A		#colspan#
10:40-11:40	Psychosocial Support Read More Recognizing anxiety/depression (PHQ-9/GAD-7 screening). Communication techniques for stigma reduction (e.g., workplace/school advocacy). Family education: Balancing support without Addressing myths (e.g., "Transfusions are addictive".	TBA
11:40-11:50	Q&A		#colspan#
11:50-12:10	Prayer and Coffee Break		#colspan#
12:10 – 13:40	Case Studies & Role-Playing Read More Scenario 1: Managing a teenager refusing chelation due to body image concerns. Scenario 2: Educating parents about genetic risks for future pregnancies.	TBA
13:40 – 14:00	Panel Discussion		#colspan#
14:00 – 15:00	Lunch		#colspan#

Shared Session
Duration	Topic	Speaker
Opening Session Burden of thalassemia in Arab countries
Chairperson: Dr. Najat Rouh-Al Deen
09:00 - 09:20	Welcome and opening remarks	Dr. Ahmad Alawadhi - Minister of Health
		Dr. Ahmad Alhuriji (KHA)
		TATAF - TBC
09:20 - 09:40	TIF Arab Thalassemia Associations Forum (TATAF): vision and mission	TBC
09:40 - 10:00	Current understanding of epidemiology ،successes and challenges of prevention programs for hemoglobinopathies	Mrs. Michelle Abi Saad
10:00-10:20	successes/challenges of prevention PMC programs for hemoglobinopathies in Kuwait 16 years’ experience	Dr. Najat Rouh-Al Deen
10:20 - 10:30	Q&A
10:30 - 10:45	Coffee break

SCIENTIFIC
Duration	Topic	Speaker
SESSION 1	Conventional management of thalassemia and SCD in Arab countries
SESSION 1	Chairperson: Prof. Ali Taher – Dr Amal Khamis
10:45 - 11:05	Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation	Prof. Amal El-Beshlawy
11:05 - 11:25	Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload	Prof. Khaled Musallam
11:25 - 11:45	Current management and unmet needs in SCD: the journey from childhood to adulthood	Prof. Miguel Abboud
11:45 - 12:00	Panel discussion and Q/A	All faculty
12:00-13:15	Praying and Lunch Break
SESSION 2	Other practical considerations in care
SESSION 2	Chairperson: Prof. Mona Hamdy - Dr. Mohammad Al-Bader
13:15- 13:35	Multidisciplinary care in transfusion-dependent thalassemia: case illustration	Dr. Ahmad Alsaffar
13:35- 13:55	Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration	Dr. Taghreed Al-Eissa
13:55-14:15	Transition from pediatric to adult care	Dr. Maha Bourusly
14:15 –14:25	Panel discussion and Q/A	All faculty
SESSION 3	Novel disease-modifying therapies in thalassemia and SCD
SESSION 3	Chairperson: Prof. Khaled Musallam - Dr. Huda Alsahaf
14:25- 14:45	Novel therapies in thalassemia	Prof. Ali Taher
14:45 - 15:05	Novel therapies in SCD	Prof. Miguel Abboud
15:05 - 15:20	Panel discussion and Q/A	All faculty
	Coffee break
SESSION 4	Curative therapies in thalassemia and SCD
SESSION 4	Chairperson: Prof. Miguel Abboud – Dr. Maha Burisli
15:20 –15:40	Debate: BMT as the curative therapy of choice in thalassemia and SCD	Prof. Miguel Abboud
15:40-16:00	Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD	Dr. Sundus Alsharidah
16:00-16:05	Panel discussion and Q/A	All faculty
16:15-17:00	Industry symposia	TBA
End of Day One

PATIENTS & FAMILY
Duration	Topic	Speaker
SESSION 1	Psychosocial sessions workshop
10:50 - 11:5	Success story of Role model Living with Thalassemia	Thalassemia patient Lamiaa Alqabandi

11:5 - 12:30	WORKSHOP 1 Description: To provide emotional and psychological support for thalassemia patients who face challenges related to body image, bullying, and relationships. Key Topic: To equip participants with practical tools for improving self-esteem and managing social pressures. The workshop will be divided into 3 parts: Body Image Struggles: How thalassemia and its treatments (e.g., blood transfusions, iron chelation) can affect physical appearance and self-esteem. The emotional impact of body changes: hair loss, skin tone changes, scars, and the feeling of being different. Dealing with Bullying: Discuss how children and adults with chronic conditions like thalassemia may experience bullying due to their appearance, behavior, or medical needs. Relationships and Communication: How thalassemia patients may feel misunderstood by friends, family, or romantic partners due to their condition. Title: Psychological Care and Support for Thalassemia Patients: A Care Giver’s Experience (you can edit as you like)	Dr. Amar Bahabhani

12:30 -12:40	Cofee break
12:40- 1:30	Building Confidence and Overcoming Challenges in Daily Life Mental Health: Body Image, Bullying, and Relationships How to Tell Your Child About Thalassemia and How to Deal with It Marriage Challenges: How to Tell Your Partner About Thalassemia Maintaining Healthy Family Dynamics Lifestyle Adaptation: Exercise, school, work. How to balance treatment with daily life. Encourage normalcy while managing health	TBA
1:30 - 2:30	Lunch Break
2:30 - 3:30	WORKSHOP 2 العنوان : تقنية التحرر من قيود الألم الوصف: تقنيات لإزالة المشاعر السلبية والألم يتضمنها استرخاء وتنفس يساعد في التخلص من الألم والتعايش مع العرض المواضيع الرئيسية: ‏EFT technique ‏Spotlight exercise Container exercise Butterfly hug technique الهدف: مساعدة المرضى على التعامل مع الألم	Mrs. Haiat Ashkanani

Nurse Workshop
Duration	Topic	Speaker
SESSION 1	Foundations of Thalassemia Care
10:45-11:5	Disease Overview (20 min) Disease Overview Types of thalassemia (α, β, transfusion-dependent vs. non-transfusion-dependent). Genetic inheritance and family counseling basics. Pathophysiology: Hemoglobin synthesis defects, anemia mechanisms, and iron overload.	Dr. Noura Aljwaisri



10:45-11:5	Q&A
11:10-11:55	1. Treatment Protocols Blood Transfusions: Indications (e.g., Hb <7 g/dL for TDT). Pre-transfusion testing (crossmatching, antibody screening). Managing transfusion reactions (acute hemolytic, febrile, allergic). Iron Chelation Therapy: Drugs (deferoxamine, deferasirox, deferiprone): administration routes, side effects, monitoring (e.g., ferritin, LIC/MRI). ). 2. Emerging Therapies Gene therapy (e.g., Zynteglo®): Nursing roles in post-treatment monitoring. Luspatercept: Managing erythroid maturation in non-transfusion-dependent patients. 3. Complications Management Iron overload: Cardiac, hepatic, endocrine impacts. Infections (e.g., hepatitis B/C, HIV risks in multi-transfused patients). Osteoporosis and bone health strategies (calcium/Vitamin D supplementation).	Dr. Abdullah Alotaibi & day care group Dr Ahmad Asafar & day care group
11:55-12:00	Q&A
12:00– 12:20	1. Emergency Management Transfusion reactions: Step-by-step response to anaphylaxis, TRALI, TACO.	Dr Nouf Alkandri
12:20-12:45	Acute iron toxicity (e.g., accidental deferasirox overdose).	Amiri intoxication team
12:45-12:55	Q&A
12:55-1:10	1. Central Blood Bank most common problems faced	Dr. Hala Samuell
1:10-1:30	2. Problems solving Panel Discussion (30 min) Q&A with Central Blood Bank representer ( dr Hala),hematologists, experienced thalassemia nurses, and patients about most common problem faced between them	Dr. Hala Samuell
1:30:00-2:00	LUNCH
2:00-5:00	Hands-On Skills Lab Practical Venipuncture/IV access techniques for patients with fragile veins. Subcutaneous deferoxamine pump setup and troubleshooting. Port-a-cath care and infection prevention.	NBK Senior Nurse Sabah Hospital -Day Care Senior Nurse

SCIENTIFIC
Duration	Topic	Speaker
SESSION 5	Meet the expert
09:00 - 9:45	Four parallel sessions (breakout) to discuss challenging local cases	Prof. Ali Taher
		Prof. Miguel Abboud
		Prof. Amal El-Beshlawy
		Prof. Mona Hamdy
SESSION 5	Thalassemia as a multiorgan disease
SESSION 5	Chairperson: Prof. Amal El-Beshlawy - Dr Abdullaah Alotaibi
9:45 - 10:00	Dental care management for thalassemia and sickle cell disease patients	Dr Hani Fadel
10:00 - 10:15	Liver disease	Dr. Abdullah Althaher
10:15 - 10:30	Endocrine and bone disease	Prof. Mona Hamdy
10:30 - 10:45	Fertility and pregnancy	Dr. Eman Al-Saygh
10:45 - 11:00	Closer look at thrombosis, renal disease, and malignancy	Prof. Ali Taher
11:00 - 11.15	Psychological burden	TBA
11:15 - 11:30	Panel discussion and Q/A	All faculty
11:30 - 11:50	Coffee break
SESSION 7	Other practical considerations in hemoglobinopathies care
SESSION 7	Chairperson: Dr Sundus Alsherida - Dr. Najat Rouh Aldeen
11:50 - 12:10	Patient blood management	Dr Mariam Alfaili
12:10 - 12:20	Novel approaches in diagnostics	TBA
12:20 - 12:30	Panel discussion and Q/A	All faculty
SESSION 8	Management of hemoglobin disorders in the digital era
SESSION 8	Chairperson: Dr. Hanan Alwazzan – Engineer Sadeq Lari
12:30 - 12:45	Blood, Bytes and Boundaries: Ethical AI in Hematology	Dr. Ali Alfaili
12:45-13:05	The role of AI	Prof. Nadia Badrawi
13:05 - 13:25	The role of telemedicine	Prof. Hatoon Ezzat
13:25 - 13:35	Panel discussion and Q/A	All faculty
13:35 - 14:30	Lunch Break
SESSION 9	Management of hemoglobin disorders in the time of crisis
SESSION 9	Chairperson: Dr. Ali Al-Muhaini – Dr Mariam Alfaili
14:30 - 14:50	The case of Gaza	Dr. Bashar Karmi
14:50 - 15:10	The case of Lebanon and Syria	Ms. Michelle Abi Saad/Prof. Ali Taher
15:10 - 15:30	Learnings from Covid-19 Crisis	Dr. Najat Rouh Aldeen
15:30 - 15:50	Panel discussion and Q/A	All faculty
SESSION 10	Research on hemoglobin disorders in Arab countries
SESSION 10	Chairperson: Prof. Khaled Musallam – Dr Najat Rouh aldeen
15:50 - 16:10	Success stories: SCD STUDY	Dr Ahmad Tarawa
16:10-16:30	Success stories: the Middle East Thought Leaders Group	Prof. Ali Taher
16:30 - 17:25	Round table discussion	Prof. Ali Taher
		Prof. Miguel Abboud
		Prof. Amal El-Beshlawy
		Prof. Mona Hamdy
		Dr. Najat Rouh Aldeen
Duration

PATIENTS & FAMILY
Duration	Topic	Speaker
SESSION 1	Psychosocial sessions workshop
08:30 - 10:30	WORKSHOP 3 Building Confidence and Overcoming Challenges in Daily Life Mental Health: Body Image, Bullying, and Relationships How to Tell Your Child About Thalassemia and How to Deal with It Marriage Challenges: How to Tell Your Partner About Thalassemia Maintaining Healthy Family Dynamics Lifestyle Adaptation: Exercise, school, work. How to balance treatment with daily life. Encourage normalcy while managing health ورشة العمل٣ لاطفال الثلاسيميا وفقر الدم المنجلي بناء الثقة والتغلب على تحديات الحياة اليومية الصحة النفسية: صورة الجسم، والتنمر، والعلاقات كيف تُخبر طفلك عن الثلاسيميا وكيف تتعامل معه تحديات الزواج: كيف تُخبر شريكك عن الثلاسيميا الحفاظ على علاقات أسرية صحية التكيف مع نمط الحياة: ممارسة الرياضة، الدراسة، العمل. كيفية موازنة العلاج مع الحياة اليومية. تشجيع الحياة الطبيعية مع إدارة الصحة	Dr. Amthal Almutairi



10:30 - 10:45	COFFEE BREAK
10:30 - 10:45	COFFEE BREAK
Session 2	Thalassemia Overview and Treatment
10:45 - 11:05	Opening Remarks and Overview on Thalassemia كلمة افتتاحية ونظرة عامة على مرض الثلاسيميا	Prof. Ali Taher
11:05 - 11:25	Blood Transfusions: What Patients Should Know نقل الدم: ما ينبغي للمرضى معرفته	Dr. Jawad Aboud
Session 3	Managing Iron Overload and Complications زيادة الحديد ومضاعفاتها علاج
11:25 – 11:45	Iron Overload and Chelation Therapy: Tips on Managing Side Effects and Treatment Adherence and Nutritional Guidance Prevention tips and Management of Complications: Heart and Liver Disease الوقاية وعلاج زيادة الحديد: نصائح حول علاج الآثار الجانبية والالتزام بالعلاج والإرشادات الغذائية ونصائح الوقاية وعلاج المضاعفات: أمراض القلب والكبد	Dr. Mustafa Alfalah
Session 4	Fertility, Pregnancy, and New Treatments الخصوبة والحمل والعلاجات الجديدة
11:25 – 11:45	Endocrinology in Thalassemia الغدد الصماء في الثلاسيميا مرض فقر الدم المنجلي ---الوقاية والعلاج	Dr Mona Hamdy
11:25 – 11:45	Fertility and Pregnancy in Thalassemia الخصوبة والحمل والعلاجات الجديدة	Dr Hanoof Alsmait
Session 5	New Treatments and Innovative Therapies العلاجات الجديدة والعلاجات المبتكرة
12:25 - 12:45	Updates On New Noval Therapy التطورات الحديثة حول العلاج الجديد	Prof. Khaled Musallam
12:45 – 1:05	Bone Marrow Transplant Update: Who Qualifies ما استحدث حول زراعة نخاع العظم: من المؤهل؟	Dr Ali Taher
1:05 - 1:25	Gene Therapy: Where Are We? العلاج الجيني: أين نحن؟	Dr Sundus Alsherida Dr Ahmad Aqeel
1:25 - 2:25	Prayer & Lunch break استراحة الصلاة والغداء
Session 6	SCD - The Patient Experience and management مرض فقر الدم المنجلي - تجربة المريض والعلاج
2:25 - 3:05	The Patient Experience Living with Sickle Cell Disease Management of Sickle Cell Disease تجربة المريض في التعايش مع مرض فقر الدم المنجلي إدارة مرض فقر الدم المنجلي	Prof. Megiel Aboud
Session 7	Associations and Advocacy program
3:05-4:00	TBA	TBA
Session 8	TATAF program
4:00 – 5:00	TBA	TBA
Closing

Nurse Workshop
Duration	Topic	Speaker
SESSION 1	Advanced Nursing Practices & Psychosocial Care
9:00-10:00	Title: Psychological Care and Support for Thalassemia Patients: A One-Day Training for Healthcare Providers Description: This course can help healthcare providers develop the emotional and psychological skills needed to better support thalassemia patients, their families, and caregivers, ensuring that their care goes beyond medical treatment and addresses their mental and emotional needs. Key Topics: CBT Introduction to cognitive-behavioral therapy (CBT) techniques for anxiety and depression. This method is used to help patients challenge negative thoughts and promote healthier thinking patterns Goal Setting & Positive Psychology Approach: Helping patients set achievable, positive goals despite their condition to develop a sense of purpose and autonomy in the patient’s life Learning Through Example: Real-life examples of thalassemia patients and the psychological challenges they face through Interactive role-playing to practice psychological support techniques	Dr Amar Bahbahani



10:00-10:10	Q&A
10:10-10:25	5. Patient Education Strategies (20 min) o Dietary guidance (low-iron diets, calcium-rich foods).	Dietician Gadeer Alazmi
10:10-10:20	Q&A
10:20-11:10	Psychosocial Support (1 hours) Recognizing anxiety/depression (PHQ-9/GAD-7 screening). Communication techniques for stigma reduction (e.g., workplace/school advocacy). Family education: Balancing support without Addressing myths (e.g., "Transfusions are addictive".	TBA
11:10-11:20	Q&A
11:20-11:30	Coffee Break
11:30-:12:45	Case Studies & Role-Playing (1.5 hours) Scenario 1: Managing a teenager refusing chelation due to body image concerns. Scenario 2: Educating parents about genetic risks for future pregnancies.	TOPICS CAN BE CHANGED ACCORDING TO THE PRESENTER
12:45-1:35	Panel Discussion (20 min) Q&A with hematologists, experienced thalassemia nurses, and patients.	TBA
1:35-2:30	Lunch

Our Speakers

we are honored to present huge numbers of professors to speak at this conference and present their research for the audience

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Scientific Committee

Conference Registration

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Registration Deadline : 12:00 pm – 30 May 2025

SELECT	TICKET DETAILS	Price
	Physicians Ticket For physicians only, with CME accreditation	د.ك10.000
	Nurses Ticket For Nurses only, with attending certification & requires a work ID matching your registration ty...	د.ك0.000
	Patients Ticket For Patients with Thalassemia and their Caregivers only	د.ك0.000

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Organized & Powered By

Dr. Najat Rouhaldeen Conference Chairperson - Hematology Consultant

DR. NAJAT ROUH-EL DIN CONFERENCE CHAIRPERSON - HEMATOLOGY CONSULTANT

Maha Buresli

Prof. Khalid Musalim

Michele

DR. NAJAT ROUHALDEEN

Dr. Sondus Alsharidah

Dr. Maha Boursly

Dr. Maryam Alfili

Dr. Ahmad Alsaffar

Dr. Abdullah Alotaibi

Prof. Amal Al Beshlawy

Mona Hamdy

Dr. Mustapha Al Fallah

Dr. Bashar Karmi

Manal Zaatar

Ali Taber

Prof. Miguel Abboud

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Dr. Najat Rouhaldeen
Conference Chairperson - Hematology Consultant

DR. NAJAT ROUH-EL DIN
CONFERENCE CHAIRPERSON - HEMATOLOGY CONSULTANT