Dr. Ahmad Abdulwahab Al-Awadhi
Dr. Ahmad Abdulwahab Al-Awadhi
WELCOME MESSAGE
Dear Colleagues,
We are delighted to welcome you to the Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF, taking place from May 30–31, 2025, at the Jumeirah Hotel Kuwait.
This important event unites healthcare professionals, patients, and stakeholders to raise awareness, promote early diagnosis, and advance care for thalassemia across the Arab region. Together, we aim to spotlight cutting-edge treatments, the role of genetic counseling, and the power of multidisciplinary collaboration.
Join us as we work collectively to improve outcomes, support patients and families, and shape a healthier future for all.
الزملاء الأعزاء،
يسعدنا أن نرحب بكم في المؤتمر العربي الأول للتوعية بالثلاسيميا وأمراض الدم المنجلي ، والذي سيُعقد بالتعاون مع المنتدي العربي لجمعيات الثلاسيميا – TATAF خلال الفترة من 30 إلى 31 مايو 2025 في فندق الجميرا – الكويت.
يجمع هذا الحدث الهام بين المتخصصين في الرعاية الصحية والمرضى والمعنيين من مختلف القطاعات بهدف رفع مستوى الوعي، وتعزيز التشخيص المبكر، وتطوير الرعاية المقدمة لمرضى الثلاسيميا في المنطقة العربية. نسعى معاً لتسليط الضوء على أحدث العلاجات، ودور الإرشاد الوراثي، وأهمية التعاون متعدد التخصصات.
انضموا إلينا لنعمل معاً على تحسين النتائج، ودعم المرضى وعائلاتهم، والمساهمة في بناء مستقبل صحي أفضل للجميع
DR. NAJAT ROUH-EL DIN
CONFERENCE CHAIRPERSON - HEMATOLOGY CONSULTANT
Join the event
Target Audience
For all healthcare professionals interested in the prevention, diagnosis, and management of thalassemia and related blood disorders, including, but not limited to:
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Hematologists and Pediatricians
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Geneticists and Genetic Counselors
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Primary Care Physicians and Specialists involved in managing chronic blood disorders
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Nurses and Allied Health Professionals working in thalassemia care
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Healthcare Administrators and Policymakers
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Researchers and Academics in hematology and genetic medicine
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Patients with Thalassemia and Their Families
| Time (24h) | Presentation | Speaker |
|---|---|---|
8:30 - 8:45
| Opening Remarks
| Dr. Najat Rouh Aldeen |
8:45 – 9:00
| Current understanding of epidemiology, successes, and challenges of prevention programs for hemoglobinopathies
| Mrs. Michelle Abi Saad
|
SESSION 1 | Conventional management of thalassemia and SCD in Arab countries
Chairperson: Prof. Ali Taher
| |
09:00 – 9:20
| Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation | Prof. Amal El-Beshlawy |
9:20 – 9:40
| Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload | Prof. Khaled Musallam |
9:40 – 10:00
| Current management and unmet needs in SCD: the journey from childhood to adulthood
| Prof. Miguel Abboud |
10:00–10:15 | Panel discussion and Q/A
| |
10:15-10:30 | COFFEE BREAK
| |
SESSION 2 | How I treat thalasemia? | |
10:30-10:50 | Multidisciplinary care in transfusion-dependent thalassemia: case illustration
| Dr. Ahmad Alsaffar |
10:50-11:10
| Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration
| Dr. Taghreed Al-Eissa |
11:10-11:30
| Transition from pediatric to adult care
| Dr. Maha Bourusly |
11:30-11:45
| Panel discussion and Q/A
| |
11:45-13:00
| Friday Prayer and Lunch break
| |
13:00–14:30
| Opening ceremony
| |
SESSION 3
| Novel disease-modifying therapies in thalassemia and SCD | |
14:30-14:50 | Novel therapies in thalassemia
| Prof. Ali Taher |
14:50-15:10
| Novel therapies in SCD
| Prof. Miguel Abboud |
15:10-15:25
| Panel discussion and Q/A
| |
SESSION 4
| Curative therapies in thalassemia and SCD Prof. Khaled Musallm - Dr. Samar Ousia
| |
15:40-16:05
| Debate: BMT as the curative therapy of choice in thalassemia and SCD
| Prof. Miguel Abboud |
16:05-16:30
| Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD
| Dr. Sundus Alsharidah |
16:30-16:45 | Panel discussion and Q/A
| |
16:45-17:00
| Coffee Break
| |
17:00-18:30
| TATAF / Thalassemia Associations | |
17:00-17:05 | Welcome Note | Dr. Bashar El Karmi |
| Session 1 | Dr Shahraad Algburi & Mrs Manal Zaatar | |
| 17:05-17:20 | Umet Patients Needs to be identified by each association Challenges in adopting International Clinical Guidelines | Dr . Al Falalh , Dr Tarawa & Dr Khattab |
| 17:20-17:30 | Challenges in Adherence to treatment | Dr Tarawa, Dr Jawad |
| 17:30-17:40 | Challenges in Prevention and National Registries | M. Abi Saad, Dr Al Falah, Dr Djeunouni |
| 17:40-17:50 | Challenges in Integration ( marriage, jobs etc..)- Social Laws | Mrs. Zaatar, Mrs Aboulghosh & Mr Merdas |
| Session 2 | Moderators for Session Mrs . Michele Abi Saad, Mrs. Jihad Aboul ghosh | |
| 17:50-18:00 | Challenges in motivating volunteers and Empowering Patients | Dr El Karmi |
| 18:00-18:15 | SWOT analysis exercise for NGOS ( identifying strength, weaknesses, opportunities and threats) | Mrs Abi Saad |
| 18:15-18:25 | Collaboration between associations , TATAF and TIF TATAF newsletter/ social media | Mrs Aboulghoush, Mr. Merhi |
| 18:25-18:30 | TATAF / Thalassemia Association - Closing Remarks |
| Time (24h) | Presentation | Speaker |
|---|---|---|
SESSION 1 | Psychosocial management work shops
| |
09:00 - 09:15
| قصة نجاح مريض ثلاسيميا Success story of Role model Living with Thalassemia | Ms. Lamiaa Alqabandi |
09:15 - 10:15 | ورشة عمل الاولي :لاستدامة الشفائية النفسية والسلوكية لمرضى الثلاسيميا وأسرهم | Dr. Amar Bahabhani |
10:15 – 10:30 | Coffee Break استراحة قصيرة | |
10:30- 11:30
| ورشة العمل الثانية : قدرية الألم وفرص الحياة
Workshop 2: “ّInevitability of Pain and Life’s Chances” | Dr. Ashraf Omar
د. أشرف عمر |
11:30 - 13:00 | صلاة الجمعة واستراحة الغداء
Friday Prayer and Lunch Break | |
13:00 - 15:00
| ورشة عمل الثالثة : لاطفال الثلاسيميا وفقر الدم المنجلي
WORKSHOP 3: Pediatric Psychological Care and Support for Thalassemia and SCA
| Dr. Amthal Almutairi د. أمثال المطيري |
15:00 – 16:00 | ساعة مرح مع أبطال الدم
Blood Heros workshop |
Nurse Workshop – Room#4
| Time (24h) | Presentation | Speaker |
|---|---|---|
SESSION 1 | Foundations of Thalassemia Care
| |
09:00-09:20
| Disease Overview
| Dr. Noura Aljwaisri
🇰🇼 |
09:20-10:20
| Treatment Protocols
| Dr. Abdullah Alotaibi Dr. Ahmad Alsaffar
🇰🇼 |
10:20-10:40
| Acute iron toxicity
| Dr. Noha Halloull
|
10:40-10:50
| Q&A
| |
10:50-11:00
| Coffee Break
| |
Session 2
| Blood Transfusion and Blood Bank
| |
11:00-11:20
| Emergency Management : Transfusion reactions
| Dr. Nouf Alkandari
🇰🇼 |
11:20-11:40
| Central Blood Bank most common problems
| Dr Hala Samuell
🇰🇼 |
11:40-11:50
| Q&A | |
11:50 – 13:00
| Friday Prayer and Lunch Break
| |
Session 3
| Advanced Nursing Practices & Psychosocial Care
| |
13:00 – 14:00
| Psychological Care and Support for Thalassemia and sickle cell Patients
| Dr Amar Bahbahani
🇰🇼 |
14:00-15:00 | Psychosocial Support
| TBA
|
End of Day |
| Time (24h) | Presentation | Speaker |
|---|---|---|
SESSION 5
| Meet the expert
| |
09:00 - 9:45
| Four parallel sessions (breakout) to discuss challenging local cases | Prof. Ali Taher |
SESSION 6
| Thalassemia as a multiorgan disease | |
|
9:45 - 10:05 | Dental care management for thalassemia and sickle cell disease patients
| Dr Hani Fadel |
10:05 - 10:25
| Liver disease
| Dr. Abdullah Althaher |
10:25 - 10:45
| Endocrine and bone disease
| Prof. Mona Hamdy |
10:45 –11:05
| Fertility and pregnancy
| Dr. Eman Al-Saygh |
11:05 –11:15
| Coffee break
| |
11:15 - 11:35
| Closer look at thrombosis, renal disease, and malignancy
| Prof. Ali Taher |
11:35- 11:55
| Psychological burden
| Dr. Hussain AlShatti
|
11:55 –12:05
| Panel discussion and Q/A
| |
12:05-12:20
| Prayer & Coffee break
| |
SESSION 7
| Silent Genes, Loud Symptoms: Diagnosing Hemoglobinopathies | |
12:20 - 12:40
| Thalasemia Diagnosis: Challenges and Limitations
| Dr. Azza Mustafa
|
12:40 –13:00
| From Traditional Methods to NGS: A Game-Changer in the Diagnosis and Management of Hemoglobinopathies
| Dr. Himanshu Chauhan |
13:00 - 13:10
| Panel discussion and Q/A
| |
SESSION 8
| Management of hemoglobin disorders in the digital era | |
13:10-13:30
| Blood, Bytes and Boundaries: Ethical AI in Hematology
| Dr. Ali Alfaili |
13:30-13:50
| The role of AI in Thalasemia
| Prof. Nadia Badrawi |
13:50 - 14:00
| Panel discussion and Q/A
| |
14:00 - 15:00
| Lunch Break
| |
SESSION 9
| Management of hemoglobin disorders in the time of crisis Chairperson: Dr Mariam Alfaili | |
15:00 - 15:20 | The case of Gaza
| Dr. Bashar Karmi |
15:20 - 15:40
| The case of Lebanon | Ms. Michelle Abi Saad |
15:40- 16:00
| Learnings from Covid-19 Crisis
| Dr. Najat Rouh Aldeen |
16:00 - 16:10
| Panel discussion and Q/A
| |
SESSION 10
| Research on hemoglobin disorders in Arab countries | |
16:10 - 16:30
| Success story
| Dr Ahmad Tarawa |
16:30-16:50
| Success stories: the Middle East Thought Leaders Group
| Prof. Ali Taher |
16:50-17:00
| Coffee Break
| |
Session 11
| Recommendation and Closing Remarks
| |
17:00 - 18:00
| Round table discussion
| Prof. Ali Taher |
| Time (24h) | Presentation | Speaker |
|---|---|---|
SESSION 1 | Psychosocial sessions workshop
| |
09:30 - 10:30
| ورشة العمل الرابعة: تقنية التحرر من قيود الألم
WORKSHOP 4: Freeing Yourself from the Bonds of Pain – A Healing Technique Workshop
| Mrs. Haiat Ashkanani أستاذة حياة اشكناني |
10:30 - 10:45 | COFFEE BREAK
استراحة قصيرة | |
SESSION 2 | Thalassemia and Sickle cell Overview and Treatment
تعرف على الثلاسيميا والانيميا المنجلي | |
11:05 - 11:25
| نقل الدم: ما ينبغي للمرضى معرفته | Dr. Jawad Aboud د. جواد عبود🇮🇶
|
SESSION 3 | علاج زيادة الحديد ومضاعفاتها
Managing Iron Overload and Complications | |
11:25 – 11:45 | الوقاية وعلاج زيادة الحديد | Dr. Mustafa Alfalah د. مصطفى الفلاح🇯🇴
|
11:45 – 12:15
| Prayer and coffee Break
استراحة الصلاة | |
SESSION 4 | الخصوبة والحمل والعلاجات الجديدة | |
12:35 – 12:55
| Fertility and Pregnancy in Thalassemia الخصوبة والحمل والعلاجات الجديدة | Dr Hanoof Alsmait د. هنوف السميط🇰🇼 |
13:00 - 13:30
| كلمة افتتاحية ونظرة عامة على مرض الثلاسيميا | Prof. Ali Taher |
13:30 – 14:00
| Updates On New Noval Therapy التطورات الحديثة حول العلاج الجديد | Prof. Khaled Musallam بروفسور خالد المسلم |
14:00 – 15:00
| Lunch break استراحة الغداء | |
15:00 – 15:20 | تجربة المريض في التعايش مع مرض فقر الدم المنجلي إدارة مرض فقر الدم المنجلي The Patient Experience Living with Sickle Cell Disease Management of Sickle Cell Disease | Prof. Megiel Aboud بروفسور ميغيل عبود |
15:20-15:40
| Bone Marrow Transplant Update: Who Qualifies ما استحدث حول زراعة نخاع العظم: من المؤهل؟ | Dr. Samar Ouisa د. سمر أوسية |
| 15:40-15:50 | إستراحة | |
15:50 – 16:10
| Endocrinology in Thalassemia الغدد الصماء في الثلاسيميا مرض فقر الدم المنجلي -الوقاية والعلاج | Dr Mona Hamdy د. منى حمدي |
16:10-16:30
| التغذية والاستشفاء | Dietician. Ghadeer Alazmi الأستاذة غدير العازمي |
Closing remarks – الختام |
We are thrilled to invite you to an Advanced Access Devices Masterclass!
Location: New Kuwait Medical Genetic Center (Ghaneima Al Ghanem Center) – The auditorium, 3rd Floor
Date: Thursday 29th of May
| Time | Topic |
|---|---|
8:30 AM- 9:00 AM
| Registration
|
9:00 AM – 9:30 AM
| Introduction: Vascular Access Management
|
9:30 AM- 10:30 AM
| Care and Maintenance for PIVCs
|
10:30 AM- 10:45 AM
| Break
|
10:45 AM- 11:45 AM
| Care and Maintenance for PICCs
|
11:45 AM- 12:00 PM
| Break
|
12:00 PM- 1:00 PM
| Port Access Needles: Access and DeAccess
|
We are thrilled to invite you to an Advanced Access Devices Masterclass!
Location: New Kuwait Medical Genetic Center (Ghaneima Al Ghanem Center) – The auditorium, 3rd Floor
Date: Friday 30th of May
| Time | Topic |
|---|---|
1:30 PM- 2:00 PM | Registration
|
2:00 PM- 2:30 PM | Introduction: Importance of Establishing a VAD Algorithm |
2:30 PM- 3:30 PM | Introduction to PICCs and Benefits of Bedside Placement |
3:30 PM- 4:00 PM | Break
|
4:00 PM- 5:00 PM | Novel Approach to Midline Insertion |
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