
WELCOME MESSAGE
Dear Participants,
Welcome to the Rare Disease Monthly Symposium 2025 – “Genetics and Hematology”, proudly hosted by the Kuwait Academy of Rare Disease (KARD).
We’re delighted to have you with us this evening at the Radisson Blu Hotel Kuwait. This symposium highlights important topics including Sickle Cell Gene Therapy, Acute Hepatic Porphyria, and Protein C Deficiency, with insights from leading experts in the field.
Thank you for joining us in advancing knowledge and care in rare genetic and hematological disorders.
Regards,

DR. HIND ALSHARHAN
Vice President, Kuwait Pediatric Association
FIND THE EVENT
AGENDA
Time |
Topic |
Speaker |
19:00 – 19:15 |
Registration & Welcome |
Dr. Hind Alsharhan |
19:15 – 19:45 |
Gaucher Disease |
Dr. Hind Alsharhan |
19:50 – 20:20 |
Acute Hepatic Porphyria |
Dr. Taghreed Al Essa |
20:30 – 20:40 |
Q & A – Prayer and Coffee Break |
|
20:40 – 21:00 |
Protein C Deficiency |
Dr. Taghreed Al Essa |
21:00 – 21:15 |
Q & A – Closing Remarks |
Dr. Hind Alsharhan |
21:15 |
Dinner |
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FAQ
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