Rare Disease Monthly Educational Event 2026
Kuwait Academy of Rare Disease Kuwait Pediatric Association

Rare Bone Disease
Educational Symposium

CME Accredited scientific symposium focused on rare genetic bone disorders, diagnostic approaches, multidisciplinary collaboration, and recent advances in management.

Event Countdown Starts on June 23, 2026 at 06:00 PM
Days
Hours
June 23, 2026 06:00 PM – 08:45 PM Sky Lounge – Radisson Blu CME Accredited

Welcome Note

Scientific Overview

The Kuwait Academy of Rare Disease (KARD), in collaboration with the Kuwait Pediatric Association, is pleased to welcome you to the “Rare Bone Disease Educational Symposium” (CME Accredited).

This scientific symposium will focus on rare genetic bone disorders, providing a comprehensive overview of their classification, pathophysiology, and diagnostic approaches, along with in-depth discussions on key conditions such as Osteogenesis Imperfecta (OI), X-linked Hypophosphatemia (XLH), Hypophosphatasia (HPP), and skeletal dysplasia in MPS IVA & VI.

The program will also highlight recent advances in management and treatment strategies, aiming to improve patient outcomes and quality of life.

The agenda features expert-led presentations and interactive panel discussions, fostering multidisciplinary collaboration and practical clinical insights in the diagnosis and management of rare bone diseases.

The target audience includes pediatricians, pediatric endocrinologists, metabolic specialists, geneticists, orthopedic specialists, internists, allied healthcare professionals, and researchers involved in the care of patients with rare bone and metabolic disorders.

AGENDA

18:00-18:30
Registration/Opening Remarks
Dr. Doha Alhomidah
18:30 – 18:50
Brittle Bone Disease: Genetics, Diagnosis, and Modern Management
Dr. Nour Al-Mutairi
18:50-19:10
Clinical Features, Genetics & Management of Achondroplasia
Dr. Iman Al-Basiri
19:10-19:30
⁠ Pathophysiology & Diagnosis of XLH
Advances in XLH Management
Dr. Wafaa Laimon
19:30-19:50
Diagnosis, Clinical Spectrum and Management of HPP
Dr. Abrar Abdulhadi
19:50-20:10
Skeletal Dysplasia in MPS IVA & VI
Diagnosis & Treatment of MPS IVA & VI
Dr. Rasha Al-Safi
20:10-20:30
Discussion- Panel Discussion & Q&A / Closing Remarks
All Speakers
20:30 – 20:45
Closing remarks
Dr. Doha Alhomidah
20:45
Dinner