Registration
Under the Patronage and Presence of His Excellency, Minister of Health
Dr. Ahmad Abdulwahab Al-Awadhi
 
1st Pan Arab
Thalasemia & Sickle Cell Disease Awareness Conference – TATAF
 
Al Messilah 2, Jumeriah Hotel, Kuwait
30 to 31 May 2025
–  12 CME Accredited –
 
 
Patients - Online zoom

WELCOME MESSAGE

1st Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF

Dear Colleagues,

We are delighted to welcome you to the Pan Arab Thalasemia & Sickle Cell Disease Awareness Conference – TATAF, taking place from May 30–31, 2025, at the Jumeirah Hotel Kuwait.

This important event unites healthcare professionals, patients, and stakeholders to raise awareness, promote early diagnosis, and advance care for thalassemia across the Arab region. Together, we aim to spotlight cutting-edge treatments, the role of genetic counseling, and the power of multidisciplinary collaboration.

Join us as we work collectively to improve outcomes, support patients and families, and shape a healthier future for all.

الزملاء الأعزاء،

يسعدنا أن نرحب بكم في المؤتمر العربي الأول للتوعية بالثلاسيميا وأمراض الدم المنجلي ، والذي سيُعقد بالتعاون مع المنتدي العربي لجمعيات الثلاسيميا – TATAF خلال الفترة من 30 إلى 31 مايو 2025 في فندق الجميرا – الكويت.

يجمع هذا الحدث الهام بين المتخصصين في الرعاية الصحية والمرضى والمعنيين من مختلف القطاعات بهدف رفع مستوى الوعي، وتعزيز التشخيص المبكر، وتطوير الرعاية المقدمة لمرضى الثلاسيميا في المنطقة العربية. نسعى معاً لتسليط الضوء على أحدث العلاجات، ودور الإرشاد الوراثي، وأهمية التعاون متعدد التخصصات.

انضموا إلينا لنعمل معاً على تحسين النتائج، ودعم المرضى وعائلاتهم، والمساهمة في بناء مستقبل صحي أفضل للجميع

Dr. Najat Rouhaldeen
Conference Chairperson - Hematology Consultant

DR. NAJAT ROUH-EL DIN
CONFERENCE CHAIRPERSON - HEMATOLOGY CONSULTANT

Join the event

Target Audience

For all healthcare professionals interested in the prevention, diagnosis, and management of thalassemia and related blood disorders, including, but not limited to:

  • Hematologists and Pediatricians

  • Geneticists and Genetic Counselors

  • Primary Care Physicians and Specialists involved in managing chronic blood disorders

  • Nurses and Allied Health Professionals working in thalassemia care

  • Healthcare Administrators and Policymakers

  • Researchers and Academics in hematology and genetic medicine

  • Patients with Thalassemia and Their Families

Find the event

Agenda

Time (24h)Opening Ceremony
13:00–13:05National Anthem & Holy Quran
13:05–13:15Minister of Health Speech
Dr. Ahmad Abdulwahab Al-Awadhi
13:15–13:25Conference Chairperson Speech
Dr. Najat Rouh Aldeen 
13:25-13:35

President Of Kuwait Hematology Association Speech
Dr. Ahmad Alhuraiji

13:35–13:45President of TIF Speech
Dr. Androulla Eleftheriou
13:45–13:55

President of TATAF Speech
Mrs. Michele Maalouli Abi Saad

13:55–14:10Honoring Ceremony
14:10–14:15Commemorative Photo
14:15–14:30Exhibition Opening
Time (24h)PresentationSpeaker
8:30 - 8:45
Opening Remarks
Dr. Najat Rouh Aldeen 
8:45 – 9:00
Current understanding of epidemiology, successes, and challenges of prevention programs for hemoglobinopathies 
Mrs. Michelle Abi Saad 

SESSION 1

Conventional management of thalassemia and SCD in Arab countries
Chairperson: Prof. Ali Taher Flag of Lebanon – Dr Amal Khamis Flag of Kuwait
09:00 – 9:20
Current management and unmet needs in transfusion-dependent thalassemia: transfusion and iron chelation

Prof. Amal El-Beshlawy

9:20 – 9:40
Current management and unmet needs in non-transfusion-dependent thalassemia: impact of anemia and iron overload

Prof. Khaled Musallam

9:40 – 10:00
Current management and unmet needs in SCD: the journey from childhood to adulthood

Prof. Miguel Abboud 

10:00–10:15
Panel discussion and Q/A
10:15-10:30
COFFEE BREAK 
SESSION 2

How I treat thalasemia?
Chairperson: Prof. Mona Hamdy Flag of Egypt - Dr. Mohammad Al-Bader Flag of Kuwait

10:30-10:50

Multidisciplinary care in transfusion-dependent thalassemia: case illustration

Dr. Ahmad Alsaffar

10:50-11:10
Multidisciplinary care in non-transfusion-dependent thalassemia: case illustration

Dr. Taghreed Al-Eissa

11:10-11:30
Transition from pediatric to adult care

Dr. Maha Bourusly

11:30-11:45
Panel discussion and Q/A
11:45-13:00
Friday Prayer and Lunch break
13:00–14:30
Opening ceremony
SESSION 3

Novel disease-modifying therapies in thalassemia and SCD
Chairperson: D. Ali Almuhaini - Dr. Huda Alsahaf 

14:30-14:50
Novel therapies in thalassemia

Prof. Ali Taher

14:50-15:10
Novel therapies in SCD

Prof. Miguel Abboud

15:10-15:25
Panel discussion and Q/A
SESSION 4

Curative therapies in thalassemia and SCD

Prof. Khaled Musallm - Dr. Samar Ousia
15:40-16:05
Debate: BMT as the curative therapy of choice in thalassemia and SCD

Prof. Miguel Abboud

16:05-16:30
Debate: Gene therapy as the curative therapy of choice in thalassemia and SCD

Dr. Sundus Alsharidah

16:30-16:45
Panel discussion and Q/A
16:45-17:00
Coffee Break
17:00-18:30
TATAF / Thalassemia Associations

17:00-17:05

Welcome Note

Dr. Bashar El Karmi
Session 1Dr Shahraad Algburi & Mrs Manal Zaatar
17:05-17:20Umet Patients Needs to be identified by each association
Challenges in adopting International Clinical Guidelines
Dr . Al Falalh , Dr Tarawa & Dr Khattab
17:20-17:30Challenges in Adherence to treatmentDr Tarawa, Dr Jawad
17:30-17:40Challenges in Prevention and National RegistriesM. Abi Saad, Dr Al Falah, Dr Djeunouni
17:40-17:50Challenges in Integration ( marriage, jobs etc..)- Social LawsMrs. Zaatar, Mrs Aboulghosh & Mr Merdas
Session 2Moderators for Session Mrs . Michele Abi Saad, Mrs. Jihad Aboul ghosh
17:50-18:00Challenges in motivating volunteers and Empowering PatientsDr El Karmi
18:00-18:15SWOT analysis exercise for NGOS
( identifying strength, weaknesses, opportunities and threats)
Mrs Abi Saad
18:15-18:25Collaboration between associations , TATAF and TIF
TATAF newsletter/ social media
Mrs Aboulghoush, Mr. Merhi
18:25-18:30TATAF / Thalassemia Association - Closing Remarks
Time (24h)PresentationSpeaker

SESSION 1

Psychosocial management work shops
09:00 - 09:15

قصة نجاح مريض ثلاسيميا

Success story of Role model

 Living with Thalassemia

Ms. Lamiaa Alqabandi
الأستاذة لمياء القبندي
🇰🇼

09:15 - 10:15

 ورشة عمل الاولي :لاستدامة الشفائية النفسية والسلوكية لمرضى الثلاسيميا وأسرهم
WORKSHOP 1: Psychological Care and Support for Thalassemia Patients

Read More

    Dr. Amar Bahabhani
    د. آمار بهبهاني
    🇰🇼

    10:15 – 10:30
    Coffee Break
    استراحة قصيرة
    10:30- 11:30
    ورشة العمل الثانية : قدرية الألم وفرص الحياة

    Workshop 2: “ّInevitability of Pain and Life’s Chances”

    Read More


    Dr. Ashraf Omar

    د. أشرف عمر
    🇰🇼

    11:30 - 13:00
    صلاة الجمعة واستراحة الغداء
    Friday Prayer and Lunch Break

    13:00 - 15:00

     ورشة عمل الثالثة : لاطفال الثلاسيميا وفقر الدم المنجلي

    WORKSHOP 3: Pediatric Psychological Care and Support for Thalassemia and SCA


    Read More


    Dr. Amthal Almutairi

     د. أمثال المطيري
    🇰🇼

    15:00 – 16:00
    ساعة مرح مع أبطال الدم
    Blood Heros workshop

    Nurse Workshop – Room#4

    Time (24h)PresentationSpeaker

    SESSION 1

    Foundations of Thalassemia Care
    09:00-09:20

    Disease Overview  

    Read More

    Dr. Noura Aljwaisri

    🇰🇼

    09:20-10:20

    Treatment Protocols

    Read More

    Dr. Abdullah Alotaibi 

    Dr. Ahmad Alsaffar

    🇰🇼

    10:20-10:40
    Acute iron toxicity
    Dr. Noha Halloull
    10:40-10:50
    Q&A
    10:50-11:00
    Coffee Break
    Session 2
    Blood Transfusion and Blood Bank
    11:00-11:20
    Emergency Management :  Transfusion reactions
    Dr. Nouf Alkandari
    🇰🇼
    11:20-11:40
    Central Blood Bank most common problems
    Dr Hala Samuell
    🇰🇼
    11:40-11:50
    Q&A
    11:50 – 13:00
    Friday Prayer and Lunch Break
    Session 3
    Advanced Nursing Practices & Psychosocial Care
    13:00 – 14:00
    Psychological Care and Support for Thalassemia and sickle cell Patients

    Read More

    Dr Amar Bahbahani

    🇰🇼

    14:00-15:00

    Psychosocial Support

    Read More

    TBA
     
    End of Day
    Time (24h)PresentationSpeaker
    SESSION 5
    Meet the expert
    09:00 - 9:45
    Four parallel sessions (breakout) to discuss challenging local cases

    Prof. Ali Taher Flag of Lebanon
    Prof. Miguel Abboud Flag of Lebanon
    Prof. Amal El-Beshlawy Flag of Egypt
    Prof. Mona Hamdy Flag of Egypt

    SESSION 6

    Thalassemia as a multiorgan disease
    Chairperson: Prof. Amal El-Beshlawy Flag of Egypt - Dr Abdullaah Alotaibi Flag of Kuwait

    9:45 - 10:05
    Dental care management for thalassemia and sickle cell disease patients

    Dr Hani Fadel Flag of Saudi Arabia

    10:05 - 10:25
    Liver disease

    Dr. Abdullah Althaher Flag of Kuwait

    10:25 - 10:45
    Endocrine and bone disease

    Prof. Mona Hamdy Flag of Egypt

    10:45 –11:05
    Fertility and pregnancy

    Dr. Eman Al-Saygh

    Flag of Kuwait
    11:05 –11:15
    Coffee break
    11:15 - 11:35
    Closer look at thrombosis, renal disease, and malignancy

    Prof. Ali Taher

    Flag of Lebanon
    11:35- 11:55
    Psychological burden
    Dr. Hussain AlShatti

    Flag of Kuwait
    11:55 –12:05
    Panel discussion and Q/A
    12:05-12:20
    Prayer & Coffee break
    SESSION 7

    Silent Genes, Loud Symptoms: Diagnosing Hemoglobinopathies
    Chairperson: Dr. Nouf Alkandari - Dr. Eman Matar Flag of Kuwait

    12:20 - 12:40
    Thalasemia Diagnosis: Challenges and Limitations
    Dr. Azza Mustafa
    12:40 –13:00
    From Traditional Methods to NGS: A Game-Changer in the Diagnosis and Management of Hemoglobinopathies
    Dr. Himanshu Chauhan
    13:00 - 13:10
    Panel discussion and Q/A
    SESSION 8

    Management of hemoglobin disorders in the digital era
    Chairperson: Dr. Hanan Alwazzan Flag of Kuwait – Engineer Sulaiman Al-Arouj  Flag of Kuwait

    13:10-13:30
    Blood, Bytes and Boundaries: Ethical AI in Hematology

    Dr. Ali Alfaili Flag of Kuwait

    13:30-13:50
    The role of AI in Thalasemia

    Prof. Nadia Badrawi

    Flag of Egypt
    13:50 - 14:00
    Panel discussion and Q/A
    14:00 - 15:00
    Lunch Break
    SESSION 9

    Management of hemoglobin disorders in the time of crisis

    Chairperson:  Dr Mariam Alfaili Flag of Kuwait - Dr. Maha Burisli Flag of Kuwait

    15:00 - 15:20
    The case of Gaza

    Dr. Bashar Karmi Flag of Palestine

    15:20 - 15:40
    The case of Lebanon

    Ms. Michelle Abi Saad
    Prof. Ali Taher

    Flag of Lebanon
    15:40- 16:00
    Learnings from Covid-19 Crisis

    Dr. Najat Rouh Aldeen Flag of Kuwait

    16:00 - 16:10
    Panel discussion and Q/A
    SESSION 10

    Research on hemoglobin disorders in Arab countries
    Chairperson: Prof. Khaled Musallam Flag of United Arab Emirates – Dr Najat Rouh aldeen Flag of Kuwait

    16:10 - 16:30
    Success story

    Dr Ahmad Tarawa Flag of Kuwait

    16:30-16:50
    Success stories: the Middle East Thought Leaders Group

    Prof. Ali Taher

    Flag of Lebanon
    16:50-17:00
    Coffee Break
    Session 11
    Recommendation and Closing Remarks
    17:00 - 18:00
    Round table discussion

    Prof. Ali Taher Flag of Lebanon
    Prof. Miguel Abboud Flag of Lebanon
    Prof. Amal El-Beshlawy Flag of Egypt
    Prof. Mona Hamdy Flag of Egypt
    Dr. Najat Rouh Aldeen Flag of Kuwait

    Time (24h)PresentationSpeaker

    SESSION 1

    Psychosocial sessions workshop
    09:30 - 10:30
    ورشة العمل الرابعة: تقنية التحرر من قيود الألم 

    WORKSHOP 4: Freeing Yourself from the Bonds of Pain – A Healing Technique Workshop


    Read More

       Mrs. Haiat Ashkanani

      أستاذة حياة اشكناني
      Mrs. Mona Alkanderi
      أستاذة منى الكندري
      🇰🇼

      10:30 - 10:45

      COFFEE BREAK
      استراحة قصيرة

      SESSION 2

      Thalassemia and Sickle cell Overview and Treatment
      تعرف على الثلاسيميا والانيميا المنجلي
      11:05 - 11:25

      نقل الدم: ما ينبغي للمرضى معرفته
      Blood Transfusions: What Patients Should Know

      Dr. Jawad Aboud  

      د. جواد عبود
      🇮🇶

      SESSION 3

      علاج زيادة الحديد ومضاعفاتها
      Managing Iron Overload and Complications
      11:25 – 11:45

      الوقاية وعلاج زيادة الحديد
      Iron Overload and Chelation Therapy

      Read More

      Dr. Mustafa Alfalah

      د. مصطفى الفلاح
      🇯🇴
      11:45 – 12:15
      Prayer and coffee Break
      استراحة الصلاة

      SESSION 4

      الخصوبة والحمل والعلاجات الجديدة
      Fertility, Pregnancy, and New Treatments

      12:35 – 12:55

      Fertility and Pregnancy in Thalassemia

      الخصوبة والحمل والعلاجات الجديدة

      Dr Hanoof Alsmait

      د. هنوف السميط
      🇰🇼
      13:00 - 13:30

      كلمة افتتاحية ونظرة عامة على مرض الثلاسيميا
      Opening Remarks and Overview on Thalassemia

      Prof. Ali Taher
      بروفسور علي طاهر

      Flag of Lebanon
      13:30 – 14:00

      Updates On New Noval Therapy

      التطورات الحديثة حول العلاج الجديد

      Prof. Khaled Musallam

      بروفسور خالد المسلم
      Flag of United Arab Emirates
      14:00 – 15:00

      Lunch break

      استراحة الغداء

      15:00 – 15:20

      تجربة المريض في التعايش مع مرض فقر الدم المنجلي

      إدارة مرض فقر الدم المنجلي

      The Patient Experience Living with Sickle Cell Disease

      Management of Sickle Cell Disease

      Prof. Megiel Aboud

       بروفسور ميغيل عبود
      Flag of Lebanon
      15:20-15:40

      Bone Marrow Transplant Update: Who Qualifies

      ما استحدث حول زراعة نخاع العظم: من المؤهل؟

      Dr. Samar Ouisa

      د. سمر أوسية

      15:40-15:50إستراحة
      15:50 – 16:10

      Endocrinology in Thalassemia

      الغدد الصماء في الثلاسيميا مرض فقر الدم المنجلي -الوقاية والعلاج

      Dr Mona Hamdy

      د. منى حمدي
      Flag of Egypt
      16:10-16:30

      التغذية والاستشفاء
      Nutrition and Recovery in Sickle Cell Disease

      Dietician. Ghadeer Alazmi

      الأستاذة غدير العازمي
      🇰🇼

      Closing remarks – الختام

      We are thrilled to invite you to an Advanced Access Devices Masterclass!
      Location: New Kuwait Medical Genetic Center (Ghaneima Al Ghanem Center) – The auditorium, 3rd Floor
      Date: Thursday 29th of May

      Time Topic
      8:30 AM- 9:00 AM
      Registration
       
      9:00 AM – 9:30 AM
      Introduction: Vascular Access Management
       
      9:30 AM- 10:30 AM
       
      Care and Maintenance for PIVCs
        
      10:30 AM- 10:45 AM
      Break
       
      10:45 AM- 11:45 AM
      Care and Maintenance for PICCs
       
      11:45 AM- 12:00 PM
      Break
       
      12:00 PM- 1:00 PM
      Port Access Needles: Access and DeAccess

      We are thrilled to invite you to an Advanced Access Devices Masterclass!
      Location: New Kuwait Medical Genetic Center (Ghaneima Al Ghanem Center) – The auditorium, 3rd Floor
      Date: Friday 30th of May

      Time Topic

      1:30 PM- 2:00 PM

      Registration
       

      2:00 PM- 2:30 PM

      Introduction: Importance of Establishing a VAD Algorithm

      2:30 PM- 3:30 PM

      Introduction to PICCs and Benefits of Bedside Placement

      3:30 PM- 4:00 PM

      Break
       

      4:00 PM- 5:00 PM

      Novel Approach to Midline Insertion

      Our Speakers

      we are honored to present huge numbers of professors to speak at this conference and present their research for the audience

      Scientific Committee​​​

      Conference Registration

      Get Your Ticket

      Registration Deadline : 12:00 pm – 30 May 2025

      SELECTTICKET DETAILSPrice
      Physicians Ticket

      For physicians & Healthcare professionals only, with CME accreditation - 10 KD only

      د.ك10.000
      Patients Ticket

      For Patients with Thalassemia and their Caregivers only

      د.ك0.000

      Collaboration

      Our Sponsors

      Platinum

      Golden

      Silver

      FAQ

      • Please be sure to use a valid private email in the registration step.
      • Please be sure to write a valid registration information.
      • Purchasing registration for multiple parties is not allowed.
      • Physical Attendance: Please use the confirmed ticket sent to your registered email to get your ID from the registration desk.
      • In order to get the CME, please be sure that all of your data is correctly admitted through the registration process.
      • CME credits will be awarded to the target audience upon attending the event and scanning the QR code with our representative.
      • The certificate will be accessible post-event and will be sent to the email address provided during registration.
      • We accept Knet and all major credit cards – VISA, Mastercard, Diners, AMEX etc.
      • Tickets purchased cannot be refunded for any reason.

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